Addie and Ryan continue to hold strong at CHOP. Addie had the procedure done on Monday. On Wednesday, they did another MRL to see why her fluid output had not decreased. They found that the “patching” they had done on Monday was holding. It is now thought that the fluid may be leaking from somewhere else. Currently we are not sure what the next steps may be.

Fortunately Addie and Ryan are really good at having a good time. Between Ryan’s silliness and Addie’s orders – everyone remains in good spirits.

The rest of us are holding down the fort in Missoula, again being as patient as possible. Love, Hope, Prayers, Michal