Addie’s celebration of her, and her life here took place on March 23rd, 2016 at the University Congregational Church, Missoula MT. As I try to put into words the way the celebration fell into place – the support, the love, the events that occurred prior and after, the children….. I wanted to provide the link […]
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We will celebrate Addie’s beautiful life on Wednesday, March 23rd at 4pm. The celebration will be held at University Congregational Church located at 405 University Avenue, Missoula MT.
Yesterday at 1 pm our sweet Addie travelled up to heaven. I will post the plans for her service as soon as they are set. Love Michal
I apologize for the delay in posts. The last two weeks have seemed to go by too quickly. Addie was able to get settled in at Community Medical Center. We are so blessed by the wonderful nurses and doctors that surround us there. At the end of last week, we were planning to transfer Addie […]
She is here!!, and she is doing well. She arrived Tuesday afternoon – and spent that afternoon with her siblings. Wednesday she was able to visit with her grandparents in the morning, and then have a delicious lunch (grilled cheese from Cafe Dolce) with an aunt. The afternoon was spent with two good friends, and […]
Later this week we will be able to welcome Addie home to Missoula. We are very anxious to have her close with all of us. Addie is in a very fragile situation. At this time, only family will be permitted to visit Addie. I know she has profoundly touched numerous hearts – and I know […]
Sometimes there are very few words to really express how one feels. Yesterday we had a conference call with the doctors at CHOP. Addie had a biopsy taken last week. The biopsy results indicated that Addie has Angiosarcoma – which is a cancer of the inner lining of blood vessels. The most widely known cause of […]
Today Addie has a great day planned. Phoebe, a cousin and friend came to visit. Addie’s Aunt who is currently there with her went to go find a slushy maker and a new release movie that Addie has been wanting to watch – and Addie is hoping to get up and get moving, perhaps a […]
It’s been another quiet week. Lots of conversations, a couple ideas, a treatment plan being discussed – and home an ultimate goal. Addie will begin vincristine this week. It is a medication that other patients with this disease have used with sirolimus to try to stop the “flare up”. The “flare up” being the cyst […]
Good Morning Everyone, Yesterday was tough – Addie’s pleural cavity did fill up with fluid as did her left arm and shoulder. Addie was having significant difficulty breathing and asked for another chest tube. They hesitated on the plurx catheter because of the incision they would have to make in her (very angry hot) skin […]