Category Archives: Uncategorized

Sometimes there are very few words to really express how one feels. Yesterday¬†we had a conference call with the doctors at CHOP. Addie had a biopsy taken last week. The biopsy results indicated that Addie has Angiosarcoma – which is a cancer of the inner lining of blood vessels. The most widely known cause of […]

It’s been another quiet week. Lots of conversations, a couple ideas, a treatment plan being discussed – and home an ultimate goal. Addie will begin vincristine this week. It is a medication that other patients with this disease have used with sirolimus to try to stop the “flare up”. The “flare up” being the cyst […]