Here are a few pictures Ryan took as he was walking back to the Hospital. He had just picked up some sushi – to take back to enjoy with Addie as they celebrate his Birthday with sushi and football. Things are going okay. Addie’s output did increase back up to 1800 ml’s. They reassure us […]
I just received a call from Ryan. He was with Addie and she was out of surgery. They found two more areas where there was significant leakage- and they felt they were able to patch the areas. Ryan says it appears that the output through the chest tube has decreased, The doctors were optimistic and […]
Here they are – the two people I miss most. Yesterday we had thought that Addie would be going in for another MR Lymphangiogram – however they decided to postpone until Wednesday. They are hoping that when they do the MR Lymphangiogram tomorrow they will see information that will allow them to go straight into […]
Addie and Ryan continue to hold strong at CHOP. Addie had the procedure done on Monday. On Wednesday, they did another MRL to see why her fluid output had not decreased. They found that the “patching” they had done on Monday was holding. It is now thought that the fluid may be leaking from somewhere […]
Hello Everyone, I apologize for the late notice. I know everyone is anxious to hear how things went. Last Friday I was under the understanding that the imaging would be one day, and the surgery then scheduled. This weekend I found out that both would be done concurrent to one another. This entire procedure took […]
Yesterday we all joined Addie in her room while we waited for the plane to arrive from Seattle to take her to CHOP, Children’s Hospital of Philadelphia. Addie and Ryan flew out at 6 pm last night. After stoping in Wisconsin to refuel, they safely arrived in Philadelphia around 11:45. Addie will undergo a special […]
Thanksgiving was unique this year; we loaded up the food and went to the Hospital to celebrate. We take each day as it comes – patience. Addie’s situation is so unique – the solutions few. We continue to research options as well as seek support from others who have travelled this path themselves or with […]
Wow, What an amazing wonderful event that was put on last night for Addie. Super special Thank You to Sierra Nicholls, Roots Acro Sports Center (what an amazing place), The Hellgate National Honor Society and Hellgate Knights for the Fight. The event was so well planned – and the staff at Roots Acro Sports Center, […]
Addie is holding her own at Community Medical Center – joking with the doctors (a successful prank- see first picture), and has more visitors coming in and out then one can keep track of – I have considered buying a guest book sign in. We are hopeful that things are beginning to move in the […]
We sit – patiently, waiting, waiting, waiting. Waiting for something, something that is going to show us that she is going to heal and get to come home. It will happen – but my patience has never been tested like this before – let alone Addie’s, an 11 yrs old fun, active, creative child. This […]