Thank goodness Addie is now here with us in Missoula. She is doing alright – but we have a path ahead of us that is going to take education, time, and patience. Each day I learn more about what may be helpful – who I should talk to – and what to watch for. Addie […]
The news came today that Addie will get to come to Missoula on Monday!!! Although she will not be able to be home – I am very excited to be able to be with her. Ryan has done such an amazing job – and of course he too is ready to return. She will be […]
I think we can all agree Addie would be an amazing DJ. Fortunately Addie and Ryan are keeping a bit distracted with fun things to do within the hospital, as well as having some great visitors who have been really helpful in giving Addie and Ryan some company and fun. They had “unhooked” Addie from […]
Good Evening – A quick update – Addie and Ryan are still in Denver. Addie released a significant amount of chyle on Saturday, after releasing less than 400 ml’s on Friday, a set back that indicates that Addie will need to have the chest tube in longer. The Doctors continue to work together to figure […]
Addie and Ryan are staying strong in Denver. Today Addie received a large gift bag full of some great gifts from The Ronald McDonald House there at the Hospital. The chyle continues to produce and therefore drain from Addie’s lung. The hope is to get the production of the chyle low enough so we can […]
Good Evening everyone, I wanted to give you a quick update. Addie is doing well – her lung continues to drain, and she is feeling much better. The fluid being collected is chyle – but they want to know if there is anything else mixed in with the chyle. They are suggesting Sirolimus – which […]
Addie is currently at Children’s Hospital Colorado. We went into her pediatrician on Friday because of a persistent cough and difficultly breathing. The day was followed by an x-ray, ct scan, and then a med jet flight to Denver. Her left lung had fluid in it and collapsed. Today at 12:30 they […]
The support we have received has been amazing – and the Thank You cards are coming, but it may take a few years :). There is one more tonight- and I apologize for the short notice. The Kettle House is hosting an event to celebrate the top three fundraising groups from the past four months […]
Just got off the phone with Ryan. Everything looks positive. They said the side effects are still due to the radiation processing through her body, even the fluid build up under her arm. YAY!!!!!!!!!!!!! Her and Ryan return tomorrow – with another MRI not scheduled for 3 months. I can take a deep breath again […]
A few pictures of our sweet Addie over the past few days. Today she is in Denver. Ryan and her left last night after a week of odd symptoms that we felt needed to be addressed by her Doctors there. At first she had some nausea, and also some pain in her hip and abdomen. […]